Priority from the Teenage and Young Adult Cancer PSP
| UNCERTAINTY: For young people with incurable cancer, how should parents/carers communicate with them to improve quality of life and experience? | |
|---|---|
| Overall ranking | This was one of the 20 questions at the workshop that fell outside of the Top 10. These were not ranked in any order of priority |
| JLA question ID | 0060/29 |
| Explanatory note | Communication and sharing information at the right time is a hallmark of good care. Young people with incurable cancer need information to make the best decisions and to live their life to the full. How parents/carers can best communicate with young people will vary, and how they can be supported and educated to do so we still do not know. |
| Evidence |
None identified |
| Health Research Classification System category | Cancer |
| Extra information provided by this PSP | |
|---|---|
| Original uncertainty examples | How is the best way to tell your child they are not going to get better ~ How to approach the subject if end of life care? |
| Submitted by | 2 x parent/carer |
| PSP information | |
|---|---|
| PSP unique ID | 0060 |
| PSP name | Teenage and Young Adult Cancer |
| Total number of uncertainties identified by this PSP. | 185 (To see a full list of all uncertainties identified, please see the detailed spreadsheet held on the JLA website) |
| Date of priority setting workshop | 19 January 2018 |