Priority from the Teenage and Young Adult Cancer PSP

1) Murray CD, McDonald C, Atkin H. The communication experiences of patients with palliative care needs: a systematic review and meta‐synthesis of qualitative findings. Palliative and Supportive Care. 2015;13(2):369-83. https://www.cambridge.org/core/journals/palliative-and-supportive-care/article/communication-experiences-of-patients-with-palliative-care-needs-a-systematic-review-and-metasynthesis-of-qualitative-findings/AC097FB89F89AEA04BF4563D4C888E6D

2) Barnes S, Gardiner C, Gott M, Payne S, Chady B, Small N, Seamark D, Halpin D. Enhancing patient‐professional communication about end‐of‐life issues in life‐limiting conditions: a critical review of the literature. Journal of Pain and Symptom Management. 2012;44(6):866‐879. http://www.sciencedirect.com/science/article/pii/S0885392412002060

3) Fawole OA, Dy SM, Wilson RF, Lau BD, Martinez KA, Apostol CC, Vollenweider D, Bass EB, Aslakson RA. A systematic review of communication quality improvement interventions for patients with advanced and serious illness. Journal of General Internal Medicine. 2013;28(4):570‐577. https://link.springer.com/article/10.1007/s11606-012-2204-4

1) Focuses on communication with other people e.g. family, not just with health care professionals. Not focused on cancer although many of studies included participants with cancer. 2) Not young people-focused. Review concludes: there is a clear need for further research to lead to the evidence-based development and rigorous evaluation of communication interventions. 3) Most interventions addressed adult mixed-illness populations, predominantly in an intensive care unit setting, and focused either on improvements in family meetings or better utilisation of palliative care consultations.