Priority from the Teenage and Young Adult Cancer PSP

UNCERTAINTY: What are the best ways to support young people getting back to 'everyday' life after treatment?
Overall ranking	This was one of the 20 questions at the workshop that fell outside of the Top 10. These were not ranked in any order of priority
JLA question ID	0060/15
Explanatory note	Finishing treatment can be a difficult time for young people, the routine, people and support suddenly fall away. Moving forward after cancer can be daunting and for young people experiencing ongoing side effects, such as fatigue, getting back to their 'everyday life' such as work or education can be challenging. The best ways to support young people following treatment are currently unknown.
Evidence	1) de Boer A; Taskila T; Tamminga S; Feuerstein M; Frings-Dresen M; Verbeek J (2015) Interventions to enhance return-to-work for cancer patients. Cochrane Database of Systematic Reviews. https://www.cochranelibrary.com/cdsr/doi/10.1002/14651858.CD007569.pub3/full ; 2) Ongoing study: CANTEEN- ReCaPTure LiFe (Resilience and Coping skills for young People To Live well Following cancer) is a new online support program for young cancer survivors which enables them to share their experiences with other young people and learn new ways to get back to ‘normal’ after cancer. https://www.canteen.org.au/research/recapture-life/ 1) Limited relevance for young people: 15 studies, included 7 breast cancer, 2 prostate, 1 head and neck cancer. Particpants were over 18 years. 3 UK studies (all breast cancer). Review concludes: We found moderate quality evidence that multidisciplinary interventions enhance the return to work of patients with cancer. This review only considers return to work and not other aspects of returning to 'everyday' life.
Health Research Classification System category	Cancer

Extra information provided by this PSP
Original uncertainty examples	What is the most effective way of not having to think about the illness and just get on with life? ~ How can we best support AYAs in their integration back to "normality" after treatment ~ What are the best ways/techniques to help young people integrate back into their normal lives after cancer treatment? ~ What is the best way to help young people come to terms with what has happened to them and rebuild a life beyond cancer ~ How do I fit back into society post treatment ?
Submitted by	7 x health professionals ~ 8 x patients ~ 1 relatives ~ 1 partners

Extra information provided by this PSP

Original uncertainty examples

What is the most effective way of not having to think about the illness and just get on with life? ~ How can we best support AYAs in their integration back to "normality" after treatment ~ What are the best ways/techniques to help young people integrate back into their normal lives after cancer treatment? ~ What is the best way to help young people come to terms with what has happened to them and rebuild a life beyond cancer ~ How do I fit back into society post treatment ?

Submitted by

7 x health professionals ~ 8 x patients ~ 1 relatives ~ 1 partners

PSP information
PSP unique ID	0060
PSP name	Teenage and Young Adult Cancer
Total number of uncertainties identified by this PSP.	185 (To see a full list of all uncertainties identified, please see the detailed spreadsheet held on the JLA website)
Date of priority setting workshop	19 January 2018