Priority 5 Stroke Rehabilitation and Long-term Care

UNCERTAINTY: How can community stroke services best be resourced and organised in all regions to provide effective home/community-based rehabilitation that meets the needs of all groups of stroke survivors such as ethnic groups, young people, stroke severities and those with multiple health conditions? (JLA PSP Priority 5)
Overall ranking	5
JLA question ID	0106/5b
Explanatory note	Many stroke survivors need professional support in the community to cope, adapt and recover in life after stroke. However, these needs are not being met as 45% of stroke survivors say they feel abandoned when they leave hospital [Ref. 2]. The resourcing and organisation of stroke services in the community are variable, which impacts the appropriateness, access to and the quality of the services. Individuals support needs also vary depending on multiple factors. Evidence is needed to understand how to resource and organise these services, and the needs of different groups of people, in order to inform how services are delivered on a local basis. Ref 2: Stroke Recoveries at Risk Report, Stroke Association, September 2020
Evidence	No evidence identified
Health Research Classification System category	Stroke

Extra information provided by this PSP
Original uncertainty examples	Can severe stroke survivors benefit from rehabilitation in their own homes? ~ Further research in effective upper limb rehab strategies in the community. ~ Can accessible, low cost community based rehabilitation lead to improved outcomes and better quality of life for stroke survivors? ~ What is the impact of limited community rehabilitation on long term outcome? ~ How available is community stroke rehabilitation for people with moderate to severe stroke? ~ What rehabilitation is available in the community?
Submitted by	Stroke Survivor x 14, Carer x 3, Health/social care professional x 21, Research Recommendations x 1, Not stated x 4

Extra information provided by this PSP

Original uncertainty examples

Can severe stroke survivors benefit from rehabilitation in their own homes? ~ Further research in effective upper limb rehab strategies in the community. ~ Can accessible, low cost community based rehabilitation lead to improved outcomes and better quality of life for stroke survivors? ~ What is the impact of limited community rehabilitation on long term outcome? ~ How available is community stroke rehabilitation for people with moderate to severe stroke? ~ What rehabilitation is available in the community?

Submitted by

Stroke Survivor x 14, Carer x 3, Health/social care professional x 21, Research Recommendations x 1, Not stated x 4

PSP information
PSP unique ID	0106
PSP name	Stroke Rehabilitation and Long-term Care
Total number of uncertainties identified by this PSP.	93 (To see a full list of all uncertainties identified, please see the detailed spreadsheet held on the JLA website)
Date of priority setting workshop	19/20th April 2021