Priority 12 Stroke Rehabilitation and Long-term Care

UNCERTAINTY: What are the factors that best predict, and make a difference to the speed, amount and timing of recovery, and how can healthcare professionals help early in the rehabilitation process to guide expectations for stroke survivors and families? (JLA PSP Priority 12)
Overall ranking	12
JLA question ID	0106/12b
Explanatory note	Rehab clinicians are most commonly asked questions about what the future may look like for a patient. Offering personalised care, support and treatment, and supporting people to recognise and develop their own strength and abilities to enable them to live and independent and fulfilling life are key principles of person-centred care [Ref. 7]. However, current guidance isn't clear and there's a need for more objective information and tools to inform long-term care planning which can benefit both professionals and patients (from workshop discussions). Ref 7: Health Foundation, 2016 https://www.health.org.uk/sites/default/files/PersonCentredCareMadeSimple.pdf
Evidence	No evidence identified
Health Research Classification System category	Stroke

Extra information provided by this PSP
Original uncertainty examples	How therapists can help early in the rehab process to guide rehab expectations for patients and families - expectations about upper limb recovery, stepping and walking. So that therapists can be giving similar message from relatively early in the rehab process and guide appropriate goal setting during transfer of care from inpatient to community settings. This will encourage patients and staff to find alternative ways to enable independence if motor recovery is limited. ~ Can physiotherapists let go of control? Stop goal setting etc. and speak to patients as adults?
Submitted by	Stroke Survivor x 53, Carer x 18, Health/social care professional x 61, Research Recommendations x 1, Not stated x 6

Extra information provided by this PSP

Original uncertainty examples

How therapists can help early in the rehab process to guide rehab expectations for patients and families - expectations about upper limb recovery, stepping and walking. So that therapists can be giving similar message from relatively early in the rehab process and guide appropriate goal setting during transfer of care from inpatient to community settings. This will encourage patients and staff to find alternative ways to enable independence if motor recovery is limited. ~ Can physiotherapists let go of control? Stop goal setting etc. and speak to patients as adults?

Submitted by

Stroke Survivor x 53, Carer x 18, Health/social care professional x 61, Research Recommendations x 1, Not stated x 6

PSP information
PSP unique ID	0106
PSP name	Stroke Rehabilitation and Long-term Care
Total number of uncertainties identified by this PSP.	93 (To see a full list of all uncertainties identified, please see the detailed spreadsheet held on the JLA website)
Date of priority setting workshop	19/20th April 2021