Priority 10 Stroke Rehabilitation and Long-term Care

UNCERTAINTY: What do stroke survivors think and feel works well, or needs improvement as they move through the stroke pathway, including the intensity of rehabilitation; what can be done to improve the stroke survivor and carer experiences? (JLA PSP Priority 10)
Overall ranking	10
JLA question ID	0106/10b
Explanatory note	Stroke care should take a patient-centred approach however there is limited evidence on the most appropriate ways to understand the perspectives of patients, what these perspectives are, how to involve them in decisions and improve their experience of care. Evidence is needed to promote and achieve this fundamental concept in stroke care.
Evidence	No evidence identified
Health Research Classification System category	Stroke

Extra information provided by this PSP
Original uncertainty examples	Are Stroke survivors truly informed of the benefits of intensive rehabilitation? ~ What do people who have suffered strokes believe helped motivate them during rehabilitation periods, such as SMART goal setting, rest periods, self-directed exercises etc.? ~ What do people who have suffered strokes believe were the greatest barriers for them from complying with prescribed exercises, mobility recommendations, therapy session attendance and safety recommendations? ~ What area do patients feel needs further development in the initial stages of stroke rehab while in hospital?
Submitted by	Stroke Survivor x 1, Carer x 1, Health/social care professional x 13, Research Recommendations x 2, Not stated x 2

Extra information provided by this PSP

Original uncertainty examples

Are Stroke survivors truly informed of the benefits of intensive rehabilitation? ~ What do people who have suffered strokes believe helped motivate them during rehabilitation periods, such as SMART goal setting, rest periods, self-directed exercises etc.? ~ What do people who have suffered strokes believe were the greatest barriers for them from complying with prescribed exercises, mobility recommendations, therapy session attendance and safety recommendations? ~ What area do patients feel needs further development in the initial stages of stroke rehab while in hospital?

Submitted by

Stroke Survivor x 1, Carer x 1, Health/social care professional x 13, Research Recommendations x 2, Not stated x 2

PSP information
PSP unique ID	0106
PSP name	Stroke Rehabilitation and Long-term Care
Total number of uncertainties identified by this PSP.	93 (To see a full list of all uncertainties identified, please see the detailed spreadsheet held on the JLA website)
Date of priority setting workshop	19/20th April 2021