Priority 8 from the Seniors' Health (Alberta, Canada) PSP

UNCERTAINTY: What are the most effective programs and services which can be provided to caregivers to combat burnout and stress when caring for older adults? (JLA PSP Priority 8)
Overall ranking	8
JLA question ID	0083/8
Explanatory note	Many older people are looked after by family of friends rather than healthcare or social care workers. Caregivers are often overwhelmed by this duty and people wanted to know how best to support caregivers
Evidence	1. Candy, B., Jones, L., Williams, R., Tookman, A., & King, M. (2009). Interventions for supporting informal caregivers of patients in the terminal phase of a disease. Cochrane Database of Systematic Reviews. doi:10.1002/14651858.cd007617 2. Lins, S., Rücker, G., Motschall, E., Langer, G., Antes, G., & Meyer, G. (2011). Efficacy and experiences of telephone counselling for informal carers of people with dementia. Cochrane Database of Systematic Reviews. doi:10.1002/14651858.cd009126 3. Forster, A., Brown, L., Smith, J., House, A., Knapp, P., Wright, J. J., & Young, J. (2012). Information provision for stroke patients and their caregivers. Cochrane Database of Systematic Reviews. doi:10.1002/14651858.cd001919.pub3 4. Legg, L. A., Quinn, T. J., Mahmood, F., Weir, C. J., Tierney, J., Stott, D. J., . . . Langhorne, P. (2011). Non-pharmacological interventions for caregivers of stroke survivors. Cochrane Database of Systematic Reviews. doi:10.1002/14651858.cd008179.pub2 5. Vernooij-Dassen, M., Draskovic, I., Mccleery, J., & Downs, M. (2011). Cognitive reframing for carers of people with dementia. Cochrane Database of Systematic Reviews. doi:10.1002/14651858.cd005318.pub2 6. Lee, H., & Cameron, M. H. (2004). Respite care for people with dementia and their carers. Cochrane Database of Systematic Reviews. doi:10.1002/14651858.cd004396.pub2
Health Research Classification System category	Generic health relevance

Extra information provided by this PSP
Original uncertainty examples	The lion's share of the burden is left on family. And family is often left unsupported until they too breakdown. ~ I think managing symptoms or conditions, or supporting someone causes a lot of moral distress on care givers as well as family/friends who support loved ones. ~ I support my 92 year old mother. I get overwhelmed with helping out with the everyday things. ~ I think that there needs to be more resources for supporting someone that takes care of someone. For example they need respite.
Submitted by	Health/Social care provider 12, Caregiver 7, Older Adult 6, Other 1

Extra information provided by this PSP

Original uncertainty examples

The lion's share of the burden is left on family. And family is often left unsupported until they too breakdown. ~ I think managing symptoms or conditions, or supporting someone causes a lot of moral distress on care givers as well as family/friends who support loved ones. ~ I support my 92 year old mother. I get overwhelmed with helping out with the everyday things. ~ I think that there needs to be more resources for supporting someone that takes care of someone. For example they need respite.

Submitted by

Health/Social care provider 12, Caregiver 7, Older Adult 6, Other 1

PSP information
PSP unique ID	0083
PSP name	Seniors' Health (Alberta, Canada)
Total number of uncertainties identified by this PSP.	97 (To see a full list of all uncertainties identified, please see the detailed spreadsheet held on the JLA website)
Date of priority setting workshop	13 August 2018