Priority 3 from the Rare Musculoskeletal Diseases in Adulthood PSP
| UNCERTAINTY: What is the psychological impact of having a rare metabolic bone disorder and how can patients and their families best be supported? (JLA PSP Priority 3) | |
|---|---|
| Overall ranking | 3 |
| JLA question ID | 0076/3 |
| Explanatory note | Not available for this PSP |
| Evidence |
None identified |
| Health Research Classification System category | Musculoskeletal |
| Extra information provided by this PSP | |
|---|---|
| Original uncertainty examples | What is the psychosocial impact of fibrous dysplasia? ~ Does having OI and lots of injuries affect the brain etc do we become socially creatively different. . I read somewhere that traumatic incidents in early life have a long term affect. There's not a lot about the pychological impact of breaking 145 bones glfor instance. If you scanned our brains would we be different? ~ Long term effects on life - mental health |
| Submitted by | Individual survey submissions categorised by Health or Social Care Professionals, Organisations representing people with rare musculoskeletal diseases, people with rare musculoskeletal diseases, relatives/carers/friends, Other. For full details of the type of submitter for each individual question, please see the spreadsheet of data held on the JLA website. |
| PSP information | |
|---|---|
| PSP unique ID | 0076 |
| PSP name | Rare Musculoskeletal Diseases in Adulthood |
| Total number of uncertainties identified by this PSP. | 39 (To see a full list of all uncertainties identified, please see the detailed spreadsheet held on the JLA website) |
| Date of priority setting workshop | 18 June 2018 |