Priority 24 from the Rare Musculoskeletal Diseases in Adulthood PSP
| UNCERTAINTY: Would specialist services result in better care for people with rare metabolic bone disorders? (JLA PSP Priority 24) | |
|---|---|
| Overall ranking | 24 |
| JLA question ID | 0076/24 |
| Explanatory note | Not available for this PSP |
| Evidence |
None identified |
| Health Research Classification System category | Musculoskeletal |
| Extra information provided by this PSP | |
|---|---|
| Original uncertainty examples | Why have we not designated specialist centres as clear referral routes for patients with these rare diseases? ~ Are there specialist facilities available for older patients with my condition? ~ Adults with OI still need regular check ups and this would be best placed in a centre of excellence, on a whole day to avoid multiple appointments requiring time away from work etc, why is this not done? |
| Submitted by | Individual survey submissions categorised by Health or Social Care Professionals, Organisations representing people with rare musculoskeletal diseases, people with rare musculoskeletal diseases, relatives/carers/friends, Other. For full details of the type of submitter for each individual question, please see the spreadsheet of data held on the JLA website. |
| PSP information | |
|---|---|
| PSP unique ID | 0076 |
| PSP name | Rare Musculoskeletal Diseases in Adulthood |
| Total number of uncertainties identified by this PSP. | 39 (To see a full list of all uncertainties identified, please see the detailed spreadsheet held on the JLA website) |
| Date of priority setting workshop | 18 June 2018 |