Priority 22 from the Rare Musculoskeletal Diseases in Adulthood PSP

UNCERTAINTY: Why are some health professionals unaware of rare metabolic bone disorders and how can this be improved? (JLA PSP Priority 22)
Overall ranking	22
JLA question ID	0076/22
Explanatory note	Not available for this PSP
Evidence	None identified
Health Research Classification System category	Musculoskeletal

Extra information provided by this PSP
Original uncertainty examples	How can delays in diagnosis be reduced? ~ How can quick diagnosis be improved and quicker medical treatment be established? ~ Now have great doctors that answer my questions, but I was misdiagnosed for the first 40 years of my life. How can the medical community help those doctors who know nothing and pretend that they know it all and give wrong diagnoses? ~ Why is fibrous Dysplasia mistaken for bone cancer too often?
Submitted by	Individual survey submissions categorised by Health or Social Care Professionals, Organisations representing people with rare musculoskeletal diseases, people with rare musculoskeletal diseases, relatives/carers/friends, Other. For full details of the type of submitter for each individual question, please see the spreadsheet of data held on the JLA website.

Extra information provided by this PSP

Original uncertainty examples

How can delays in diagnosis be reduced? ~ How can quick diagnosis be improved and quicker medical treatment be established? ~ Now have great doctors that answer my questions, but I was misdiagnosed for the first 40 years of my life. How can the medical community help those doctors who know nothing and pretend that they know it all and give wrong diagnoses? ~ Why is fibrous Dysplasia mistaken for bone cancer too often?

Submitted by

Individual survey submissions categorised by Health or Social Care Professionals, Organisations representing people with rare musculoskeletal diseases, people with rare musculoskeletal diseases, relatives/carers/friends, Other. For full details of the type of submitter for each individual question, please see the spreadsheet of data held on the JLA website.

PSP information
PSP unique ID	0076
PSP name	Rare Musculoskeletal Diseases in Adulthood
Total number of uncertainties identified by this PSP.	39 (To see a full list of all uncertainties identified, please see the detailed spreadsheet held on the JLA website)
Date of priority setting workshop	18 June 2018