Priority 2 from the Rare Musculoskeletal Diseases in Adulthood PSP
| UNCERTAINTY: What is the cause of pain in people with rare metabolic bone disorders? (JLA PSP Priority 2) | |
|---|---|
| Overall ranking | 2 |
| JLA question ID | 0076/2 |
| Explanatory note | Not available for this PSP |
| Evidence |
Pain in fibrous dysplasia of bone: age-related changes and the anatomical distribution of skeletal lesions.Kelly MH, Brillante B, Collins MT. Osteoporos Int. 2008 Jan;19(1):57-63. |
| Health Research Classification System category | Musculoskeletal |
| Extra information provided by this PSP | |
|---|---|
| Original uncertainty examples | Why am I constantly in pain? ~ How do hormones impact on PFD lesions? There is a definite connection between pain levels and menstrual cycle, what is this due to? ~ Is there research to suggest there is any link to decreased strength and ability / increased pain and problems around the time of an OI women's periods? ~ FD:What is the source of bone pain? |
| Submitted by | Individual survey submissions categorised by Health or Social Care Professionals, Organisations representing people with rare musculoskeletal diseases, people with rare musculoskeletal diseases, relatives/carers/friends, Other. For full details of the type of submitter for each individual question, please see the spreadsheet of data held on the JLA website. |
| PSP information | |
|---|---|
| PSP unique ID | 0076 |
| PSP name | Rare Musculoskeletal Diseases in Adulthood |
| Total number of uncertainties identified by this PSP. | 39 (To see a full list of all uncertainties identified, please see the detailed spreadsheet held on the JLA website) |
| Date of priority setting workshop | 18 June 2018 |