Priority 19 from the Rare Musculoskeletal Diseases in Adulthood PSP

UNCERTAINTY: What is the best form of exercise for people with rare metabolic bone disorders? (JLA PSP Priority 19)
Overall ranking	19
JLA question ID	0076/19
Explanatory note	Not available for this PSP
Evidence	None identified
Health Research Classification System category	Musculoskeletal

Extra information provided by this PSP
Original uncertainty examples	What types of exercise can help avoid operations? Is there any recommendations, one can give phystiotherapists who don't know anyone with XLH? ~ How can we maintain muscle strength when walking becomes limited and sports equipment is oversized? ~ What kind of exercise should I do when recovering from surgery to keep the other parts of my body strong? ~ Should I be exercising despite lots of pain in my joints?
Submitted by	Individual survey submissions categorised by Health or Social Care Professionals, Organisations representing people with rare musculoskeletal diseases, people with rare musculoskeletal diseases, relatives/carers/friends, Other. For full details of the type of submitter for each individual question, please see the spreadsheet of data held on the JLA website.

Extra information provided by this PSP

Original uncertainty examples

What types of exercise can help avoid operations? Is there any recommendations, one can give phystiotherapists who don't know anyone with XLH? ~ How can we maintain muscle strength when walking becomes limited and sports equipment is oversized? ~ What kind of exercise should I do when recovering from surgery to keep the other parts of my body strong? ~ Should I be exercising despite lots of pain in my joints?

Submitted by

Individual survey submissions categorised by Health or Social Care Professionals, Organisations representing people with rare musculoskeletal diseases, people with rare musculoskeletal diseases, relatives/carers/friends, Other. For full details of the type of submitter for each individual question, please see the spreadsheet of data held on the JLA website.

PSP information
PSP unique ID	0076
PSP name	Rare Musculoskeletal Diseases in Adulthood
Total number of uncertainties identified by this PSP.	39 (To see a full list of all uncertainties identified, please see the detailed spreadsheet held on the JLA website)
Date of priority setting workshop	18 June 2018