Priority 6 from the Palliative and end of life care PSP

UNCERTAINTY: What are the best ways to determine a person’s palliative care needs, then initiate and deliver this care for patients with non-cancer diseases (such as chronic obstructive pulmonary disease (COPD), heart failure, motor neurone disease (MND), AIDS, multiple sclerosis, Crohn’s disease, Parkinson’s disease, dementia, and stroke)? (JLA PSP Priority 6)
Overall ranking 6
JLA question ID 0026/6
Evidence

Ongoing trials: Do case conferences between general practitioners and specialist teams improve outcomes and service utilisation in people with life limiting heart and lung disease compared to usual care? http://www.anzctr.org.au/Trial/Registration/TrialReview.aspx?id=365458

PROLONG Study

The study of Australian general practitioners using a systematic death prediction tool versus clinical intuition on the accuracy of prediction of patient death http://www.anzctr.org.au/Trial/Registration/TrialReview.aspx?ACTRN=12613000266763

Barriers and facilitator to palliative care of patients with chronic heart failure - PaCa-HF http://www.uniklinik-freiburg.de/aqms/projekte/versorgungsforschung/pacahf.html
Health Research Classification System category Generic
Extra information provided by this PSP
Original uncertainty examples Why is MCNS still overlooked by health care professionals when considering support for families caring for patients who are approaching end of life? ~ what is the best model of care for specialist palliative care for those with long term conditions such as Parkinson's disease, multiple sclerosis, COPD, heart failure? ~ What is the role of a specialist palliative care serves (if any) when patients have chronic (rather than terminal illness? ~ What is the best model of palliative care provision for patients with heart failure?
Submitted by Bereaved Carers x 2 ~ Professionals x 14 ~ Carers x 1 ~ Volunteers x 1 ~ Members of the Public x 2
Outcomes to be measured Patient Satisfaction; health related quality of life; health related cost; quality of care
PSP information
PSP unique ID 0026
PSP name Palliative and end of life care
Total number of uncertainties identified by this PSP. 83 (To see a full list of all uncertainties identified, please see the detailed spreadsheet held on the JLA website)
Date of priority setting workshop 21 November 2014