Priority 28 from the Palliative and end of life care PSP

UNCERTAINTY: What are the best ways to manage the problems associated with difficulty in swallowing, including drooling and excessive salivation, for patients with Parkinson's disease, motor neurone disease (MND) and dementia who are at the end of their life? (JLA PSP Priority 28)
Overall ranking	28
JLA question ID	0026/28
Evidence	Dai Y, Li C, Xie Y, Liu X, Zhang J, Zhou J, Pan X, Yang S. Interventions for dysphagia in oesophageal cancer. Cochrane Database of Systematic Reviews 2014, Issue 10. Art. No.: CD005048. DOI: 10.1002/14651858.CD005048.pub4 Flynn EP, Smith CH, Walsh CD, Walshe M. Modifying the consistency of food and fluids for swallowing difficulties in dementia (Protocol). Cochrane Database of Systematic Reviews 2014, Issue 4. Art. No.: CD011077. DOI: 10.1002/14651858.CD011077. Sampson EL, Candy B, Jones L. Enteral tube feeding for older people with advanced dementia. Cochrane Database of Systematic Reviews 2009, Issue 2. Art. No.: CD007209. DOI: 10.1002/14651858.CD007209.pub2. Katzberg HD, Benatar M. Enteral tube feeding for amyotrophic lateral sclerosis/motor neuron disease. Cochrane Database of Systematic Reviews 2011, Issue 1. Art. No.: CD004030. DOI: 10.1002/14651858.CD004030.pub3
Health Research Classification System category	Generic

Extra information provided by this PSP
Original uncertainty examples	How to balance providing fluids to those who are dying who cannot swallow safely or easily?
Submitted by	Professionals x 2 ~ Carer x 1
Outcomes to be measured	Patient Satisfaction; health related quality of life; health related cost.

PSP information
PSP unique ID	0026
PSP name	Palliative and end of life care
Total number of uncertainties identified by this PSP.	83 (To see a full list of all uncertainties identified, please see the detailed spreadsheet held on the JLA website)
Date of priority setting workshop	21 November 2014