Priority 2 from the Palliative and end of life care PSP

UNCERTAINTY: How can access to palliative care services be improved for everyone regardless of where they are in the UK? (JLA PSP Priority 2)
Overall ranking	2
JLA question ID	0026/2
Evidence	Evaluation of an initial assessment palliative care clinic for new clients referred to palliative care by retrospective case note audit http://www.anzctr.org.au/Trial/Registration/TrialReview.aspx?id=361983 A Randomised Control Trial for Advance Care Planning and Symptom Management for patients identified in the emergency department and followed up at home http://www.anzctr.org.au/Trial/Registration/TrialReview.aspx?id=366429 A randomised control trial for Advanced Care Planning plus Symptom Management and Support for patients with advanced progressive life-threatening health conditions who present to the Emergency Department at Prince of Wales Hospital http://www.anzctr.org.au/Trial/Registration/TrialReview.aspx?id=366429
Health Research Classification System category	Generic

Extra information provided by this PSP
Original uncertainty examples	How do you get through the system? ~ Why is there inadequate access to therapy services when their aim is to improve or at least maximise quality of life? ~ Can we not have a self referral system to run alongside health care professional referrals?
Submitted by	Bereaved Carers x 1 ~ Member of the public x 1 ~ Professionals x 8 ~ Carers x 3
Outcomes to be measured	Patient Satisfaction; health related quality of life; health related cost; benefits of advanced care planning

PSP information
PSP unique ID	0026
PSP name	Palliative and end of life care
Total number of uncertainties identified by this PSP.	83 (To see a full list of all uncertainties identified, please see the detailed spreadsheet held on the JLA website)
Date of priority setting workshop	21 November 2014