Priority 10 from the Palliative and end of life care PSP
| UNCERTAINTY: What are the best ways to assess and treat pain and discomfort in people at the end of life with communication and/or cognitive difficulties, perhaps due to motor neurone disease (MND), dementia, Parkinson’s disease, brain tumour (including glioblastoma) or head and neck cancer, for example? (JLA PSP Priority 10) | |
|---|---|
| Overall ranking | 10 |
| JLA question ID | 0026/10 |
| Evidence | |
| Health Research Classification System category | Generic |
| Extra information provided by this PSP | |
|---|---|
| Original uncertainty examples | How to tell when someone in the very end stages of dementia is in pain and or distress. ~ How good is pain relief when the person suffering is no longer able to communicate verbally? ~ I realise pain can be subjective, but it would be worth looking to develop better pain tools for those who are unable to communicate (either due to level of consciousness, impact of drugs, or due to the condition such as MND or stroke). |
| Submitted by | Professionals x 2 ~ Carers x 2 ~ Bereaved carers x 5 ~ Members of the Public x 1 ~ Patients x 1 |
| Outcomes to be measured | Health related quality of life, good death, Change in symptoms or change in management of symptoms, adverse effects or complications |
| PSP information | |
|---|---|
| PSP unique ID | 0026 |
| PSP name | Palliative and end of life care |
| Total number of uncertainties identified by this PSP. | 83 (To see a full list of all uncertainties identified, please see the detailed spreadsheet held on the JLA website) |
| Date of priority setting workshop | 21 November 2014 |