Priority 6 from the Neurodevelopmental Disorders Canada PSP

UNCERTAINTY: Which resources are needed to more effectively address the health, social and emotional needs of families or caregivers of individuals with neurodevelopmental disorders? (JLA PSP Priority 6)
Overall ranking 6
JLA question ID 0056/6
Explanatory note The importance of supports for those who care for individuals with neurodevelopmental disorders (parents, siblings, other relatives, or caregivers) is raised through this priority. The question aims to address what resources are needed to ensure that families and caregivers of individuals with neurodevelopmental disorders are sufficiently supported in terms of their phyiscal and emotional wellness, at all stages of the lifespan of the individual with an neurodevelopmental disorder. The supports may be community-based or formalized support (e.g. intensive training). Accessibility and financial burden are important factors in answering this question.
Evidence None identified
Health Research Classification System category Mental Health
Extra information provided by this PSP
Original uncertainty examples How can we better support families caring for a child with neurodevelopmental conditions across the lifespan? ~ How can we best support caregivers' health and mental health? That is, what are ways that we can maximize the health of caregivers (family) so that they can provide support and not feel isolated. ~ What are the health, social and emotional needs of families caring for an individual with a neurodevelopmental disorder? ~ How to manage daily life with NDDs?
Submitted by Mostly family members/carers, also clinicians, service providers and patients
PSP information
PSP unique ID 0056
PSP name Neurodevelopmental Disorders (Canada)
Total number of uncertainties identified by this PSP. 63 (To see a full list of all uncertainties identified, please see the detailed spreadsheet held on the JLA website)
Date of priority setting workshop 28 September 2017