Priority 14 from the Neurodevelopmental Disorders Canada PSP

UNCERTAINTY: How can barriers be reduced to ensure timely access of services, treatments and supports for neurodevelopmental disorders? (JLA PSP Priority 14)
Overall ranking	14
JLA question ID	0056/14
Explanatory note	Poor access or awareness of services, treatments and supports for neurodevelopmental disorders is a huge challenge for families. Barriers to accessing services include prohibitive costs, geographical barriers, lack of transportation, years-long wait lists, and inconsistent support and information. The inequality of access and support for those in rural settings and northern communities is an especially important geographical barrier.
Evidence	None identified
Health Research Classification System category	Mental Health

Extra information provided by this PSP
Original uncertainty examples	How accessible are the services for individuals with neurodevelopmental developmental disorders? ~ How can people who are in need get access to the help they need much faster and easier? ~ how to access care, especially crisis care? ~ How can we be consistent with support to people diagnosed so as to achieve better responses? ~ What interferes with implementation of structural supports (i.e. school/occupational resources) and what are some ways around those barriers? ~ How to help areas with few supports? ~ is there a way to supplement costs of specialized therapies that may not be covered?
Submitted by	Family members/carers, patients, clinicians, service providers, members of organizations

Extra information provided by this PSP

Original uncertainty examples

How accessible are the services for individuals with neurodevelopmental developmental disorders? ~ How can people who are in need get access to the help they need much faster and easier? ~ how to access care, especially crisis care? ~ How can we be consistent with support to people diagnosed so as to achieve better responses? ~ What interferes with implementation of structural supports (i.e. school/occupational resources) and what are some ways around those barriers? ~ How to help areas with few supports? ~ is there a way to supplement costs of specialized therapies that may not be covered?

Submitted by

Family members/carers, patients, clinicians, service providers, members of organizations

PSP information
PSP unique ID	0056
PSP name	Neurodevelopmental Disorders (Canada)
Total number of uncertainties identified by this PSP.	63 (To see a full list of all uncertainties identified, please see the detailed spreadsheet held on the JLA website)
Date of priority setting workshop	28 September 2017