Priority 4 from the Myeloma (Canada) PSP

UNCERTAINTY: What are new treatments for myeloma patients that will improve life expectancy with fewer adverse side effects (e.g., pain, nausea, neuropathy, immune suppression)? (JLA PSP Priority 4)
Overall ranking 4
JLA question ID 0113/4
Explanatory note Participants are eager for new treatments at all stages of the disease that will improve the progression-free and overall survival; minimize the side effects of treatment, such as pain, nausea, neuropathy, and immune supression; and improve their quality of life.
Evidence

No evidence identified

Health Research Classification System category Cancer and neoplasms
Extra information provided by this PSP
Original uncertainty examples More treatment options are needed, I think, as our doctor says there are only 5 drugs. ~ Can we get a drug that does not cause a multitude of side effects that impact quality of life. ~ life expectancy improvements thru new drug therapy. ~ Create drugs that don't have such awful side effects. ~ Extension of survival through new treatments? ~ Continue research into new therapies and improve therapies and medications that have been successful. ~ Finding treatment meds that don't have to suppress your immune system.
Submitted by Please see the PSP Engagement Summary on the JLA website
PSP information
PSP unique ID 0113
PSP name Myeloma (Canada)
Total number of uncertainties identified by this PSP. 59 (To see a full list of all uncertainties identified, please see the detailed spreadsheet held on the JLA website)
Date of priority setting workshop 28 April 2021