Priority 4 from the Multiple Sclerosis PSP
| UNCERTAINTY: How can people with multiple sclerosis be best supported to self manage their condition? (JLA PSP Priority 4) | |
|---|---|
| Overall ranking | 4 |
| JLA question ID | 0016/4 |
| Explanatory note | Existing relevant systematic reviews are not up-to-date |
| Evidence |
No evidence found |
| Systematic reviews that need extending or updating |
de Jongh T, Gurol-Urganci I, Vodopivec-Jamsek V, Car J, Atun R. Mobile phone messaging for facilitating self-management of long-term illnesses. Cochrane Database of Systematic Reviews 2012, Issue 12. Art. No.: CD007459. DOI: 10.1002/14651858.CD007459.pub2. |
| Systematic reviews in preparation |
Khan F, Amatya B, Kesselring J. Telerehabilitation for persons with multiple sclerosis (Protocol). Cochrane Database of Systematic Reviews 2013, Issue 5. Art. No.: CD010508. DOI: 10.1002/14651858.CD010508. Warner G, Killian L, Doble S, McKenzie JE, Versnel J, Packer T. Community-based self-management programs for improving participation in life activities in older adults with chronic conditions (Protocol). Cochrane Database of Systematic Reviews 2012, Issue 9. Art. No.: CD010097. DOI: 10.1002/14651858.CD010097. Coulter A, Entwistle VA, Eccles A, Ryan S, Shepperd S, Perera R. Personalised care planning for adults with chronic or long-term health conditions (Protocol). Cochrane Database of Systematic Reviews 2013, Issue 5. Art. No.: CD010523. DOI: 10.1002/14651858.CD010523. Carson KV, Labiszewski NA, Brinn MP, Esterman AJ, Peters M, Wood-Baker R, Smith BJ. Consumer guidelines for chronic disease management (Protocol). Cochrane Database of Systematic Reviews 2012, Issue 9. Art. No.: CD010096. DOI: 10.1002/14651858.CD010096. |
| Ongoing controlled trials |
Examining the effects of a Telehealth self-management intervention in Multiple Sclerosis NCT01572714 Mindfulness Based Stress Reduction in Multiple Sclerosis (MS) NCT01419301 |
| Health Research Classification System category | Neurological |
| Extra information provided by this PSP | |
|---|---|
| Original uncertainty examples | No examples provided. This is an indicative uncertainty and several submissions were merged to form this one. |
| Submitted by | 4 patients ~ 1 carer ~ 5 clinicians |
| Outcomes to be measured | Management and or change of multiple sclerosis symptoms; adverse effects or complications; acceptability to patients or carers; time to return to work or normal activity; time in hospital and or needing health or social care services; health related quality of life; and costs. |
| PSP information | |
|---|---|
| PSP unique ID | 0016 |
| PSP name | Multiple Sclerosis |
| Total number of uncertainties identified by this PSP. | 82 (To see a full list of all uncertainties identified, please see the detailed spreadsheet held on the JLA website) |
| Date of priority setting workshop | July 2013 |