Priority 21 from the Mitochondrial Disease PSP

UNCERTAINTY: What are the most effective ways to treat and manage problems with balance and co-ordination? (JLA PSP Priority 21)
Overall ranking 21
JLA question ID 0095/21
Explanatory note Not available
Evidence

https://pubmed.ncbi.nlm.nih.gov/29891055%20https://pubmed.ncbi.nlm.nih.gov/29307008%20
https://www.cochranelibrary.com/cdsr/doi/10.1002/14651858.CD005397.pub4/abstract

Health Research Classification System category Metabolic and Endocrine
Extra information provided by this PSP
Original uncertainty examples Alleviating symptoms such as balance issues. ~ Alleviating balance issues I have ~ Mitochondria disease is untreatable but more information on treating symptoms- the shaking ~ Will there be any treatments, in any form, to help with coordination? ~ optimising function in people with cerebellar ataxia, balance problems, dystonia and/or tremor
Submitted by 3 x Patient, 1 x Healthcare Professional, 1 x Carer
PSP information
PSP unique ID 0095
PSP name Mitochondrial Disease
Total number of uncertainties identified by this PSP. 42 (To see a full list of all uncertainties identified, please see the detailed spreadsheet held on the JLA website)
Date of priority setting workshop 19 January 2020