Priority 20 from the Mitochondrial Disease PSP

UNCERTAINTY: What are the most effective ways to treat and manage pain? (JLA PSP Priority 20)
Overall ranking	20
JLA question ID	0095/20
Explanatory note	Not available
Evidence	None identified
Health Research Classification System category	Metabolic and Endocrine

Extra information provided by this PSP
Original uncertainty examples	What are the best ways to treat the symptoms related to mitochondrial disease (including pain) ~ Developments in pain relief. ~ Appropriate pain relief and developments in this area. ~ Are there any pre disposing factors that make symptoms worse or better? For example hot or cold temperatures can make my pain fluctuate ~ What are best forms of analgesia for muscle pain? ~ Will there be any treatments, in any form, to help with pain? ~ Ongoing research into medications to manage symptoms (myalgia for example) physical treatments ~ Pain management
Submitted by	4 x Healthcare Professional, 3 x Patient, 1 x Carer

Extra information provided by this PSP

Original uncertainty examples

What are the best ways to treat the symptoms related to mitochondrial disease (including pain) ~ Developments in pain relief. ~ Appropriate pain relief and developments in this area. ~ Are there any pre disposing factors that make symptoms worse or better? For example hot or cold temperatures can make my pain fluctuate ~ What are best forms of analgesia for muscle pain? ~ Will there be any treatments, in any form, to help with pain? ~ Ongoing research into medications to manage symptoms (myalgia for example) physical treatments ~ Pain management

Submitted by

4 x Healthcare Professional, 3 x Patient, 1 x Carer

PSP information
PSP unique ID	0095
PSP name	Mitochondrial Disease
Total number of uncertainties identified by this PSP.	42 (To see a full list of all uncertainties identified, please see the detailed spreadsheet held on the JLA website)
Date of priority setting workshop	19 January 2020