Priority 19 (joint) from the Liver Glycogen Storage Disease (International) PSP
| UNCERTAINTY: What are the consequences of consumption of alcohol and drugs for patients with liver Glycogen Storage Disease? (JLA PSP Priority 19(Joint)) | |
|---|---|
| Overall ranking | 19 (Joint) |
| JLA question ID | 0090/19 (Joint) |
| Explanatory note |
Consumption of alcohol and drugs is hazardoes for patients with liver GSD for multiple reasons. However, the question illustrates especially for patients and parents a gap of knowledge to which extent this applies. |
| Evidence |
For details of the evidence checked, please see the spreadsheet held on the JLA website. |
| Health Research Classification System category | Metabolic and endocrine |
| Extra information provided by this PSP | |
|---|---|
| Original uncertainty examples | Is there a point when liver glycogen storage disease patients are safe to drink alcohol? ~ What effect does recreational Marijuana use have on the GSD population |
| Submitted by | Patient, carer and healthcare professionals |
| PSP information | |
|---|---|
| PSP unique ID | 0090 |
| PSP name | International Glycogen Storage Disease PSP |
| Total number of uncertainties identified by this PSP | 72 (To see a full list of all uncertainties identified, please see the detailed spreadsheet held on the JLA website) |
| Date of priority setting workshop | 24 May 2019 |