Priority 6 from the Learning Difficulties Scotland PSP

UNCERTAINTY: How can parents, carers, brothers and sisters and extended families of children and young people with learning difficulties, be best supported to achieve their best quality of life before, during and after the diagnosis or identification in home, school and community contexts? (JLA PSP Priority 6)
Overall ranking	6
JLA question ID	0070/6
Explanatory note	Not available for this PSP
Evidence	L. Skotarczak and G. K. Lee. (2015). Effects of parent management training programs on disruptive behavior for children with a developmental disability: A meta-analysis. Research in Developmental Disabilities. 38: 272-287. E. Vasilopoulou, J. Nisbet. (2016). The quality of life of parents of children with autism spectrum disorder: a systematic review. Research in Autism Spectrum Disorders, 23: 36-49. http://dx.doi.org/10.1016/j.rasd.2015.11.008. N. Golfenshetin, E. Srulovici, B. Medoff-Cooper. (2015). Investigating Parenting Stress across Pediatric Health Conditions - A Systematic Review. Comprehensive Child & Adolescent Nursing. 39(1). https://doi.org/10.3109/01460862.2015.1078423.
Health Research Classification System category	Mental Health

Extra information provided by this PSP
Original uncertainty examples	What are the factors which prevent parents from accessing support or parenting groups where there child has LD? ~ Could more support and help be provided for parents/carers of children with developmental disabilities, where information could be shared, strategies, treatments or therapies recommended? ~ An adult who experienced learning difficulties as a child & a parent/carer? ~ What help can I get?
Submitted by	Professionals x 24 ~ parents/carers x 35 ~ Adults who experienced learning difficulties as a child x 1 ~ child/young person x 1

Extra information provided by this PSP

Original uncertainty examples

What are the factors which prevent parents from accessing support or parenting groups where there child has LD? ~ Could more support and help be provided for parents/carers of children with developmental disabilities, where information could be shared, strategies, treatments or therapies recommended? ~ An adult who experienced learning difficulties as a child & a parent/carer? ~ What help can I get?

Submitted by

Professionals x 24 ~ parents/carers x 35 ~ Adults who experienced learning difficulties as a child x 1 ~ child/young person x 1

PSP information
PSP unique ID	0070
PSP name	Learning Difficulties (Scotland)
Total number of uncertainties identified by this PSP.	40 (To see a full list of all uncertainties identified, please see the detailed spreadsheet held on the JLA website)
Date of priority setting workshop	11 June 2018