Priority 21 from the Learning Difficulties Scotland PSP

UNCERTAINTY: How can we understand what it is like to live with learning difficulties from a child or young person's perspective? (JLA PSP Priority 21)
Overall ranking	21
JLA question ID	0070/21
Explanatory note	Not available for this PSP
Evidence	Domeij, H. Fahlstrom, G. Bertilsson, G., et al. (2018). Experiences of living with fetal alcohol spectrum disorders: a systematic review and synthesis of qualitative data. Developmental Medicine & Child Neurology. DOI: 10.1111/dmcn.13696 MA. Rashid, S. Lovick, NR. Llanwarne. (2017). Medication-taking experiences in attention deficit hyperactivity disorder: a systematic review. Family Practice. 1-9. https://doi.org/10.1093/fampra/cmx088 S. Lindsay. (2016). Child and youth experiences and perspectives of cerebral palsy: a qualitative systematic review. Child: Care, Health and Development. 42(2): 153-175. doi:10.1111/cch.12309
Health Research Classification System category	Mental Health

Extra information provided by this PSP
Original uncertainty examples	Do young people feel attending meetings to discuss their additional support and education planning is helpful? Do they have any other suggestions of how they could be actively involved and consulted in the process without having to be in a meeting? ~ How can people with complex needs effect more change with regards to any aspect of their social, health or educational life? ~ Are life skills more important to learn than curriculum based learning?
Submitted by	Professionals x 4 ~ parents/carers x 2 ~ Adults who experienced learning difficulties as a child x 0 ~ child/young person x 0 ~ Unknown x 2

Extra information provided by this PSP

Original uncertainty examples

Do young people feel attending meetings to discuss their additional support and education planning is helpful? Do they have any other suggestions of how they could be actively involved and consulted in the process without having to be in a meeting? ~ How can people with complex needs effect more change with regards to any aspect of their social, health or educational life? ~ Are life skills more important to learn than curriculum based learning?

Submitted by

Professionals x 4 ~ parents/carers x 2 ~ Adults who experienced learning difficulties as a child x 0 ~ child/young person x 0 ~ Unknown x 2

PSP information
PSP unique ID	0070
PSP name	Learning Difficulties (Scotland)
Total number of uncertainties identified by this PSP.	40 (To see a full list of all uncertainties identified, please see the detailed spreadsheet held on the JLA website)
Date of priority setting workshop	11 June 2018