Priority 15 from the Learning Difficulties Scotland PSP

UNCERTAINTY: What effect does having a formal label or a diagnosis have on children and young people living with a learning difficulty and those involved in their care and the public? (JLA PSP Priority 15)
Overall ranking	15
JLA question ID	0070/15
Explanatory note	Not available for this PSP
Evidence	HH. Koester, S. Arthanat. (2017). Effect of diagnosis, body site and experience on text entry rate of individuals with physical disabilities: a systematic review. Disability and Rehabilitation, 13(3). https://doi.org/10.1080/17483107.2017.1369588 C. A. Melville, A. Oppewal, E. L. Schafer, E. Freiberger, M. Guerra-Balic, et al. . (2017). Definitions, measurement and prevalence of sedentary behaviour in adults with intellectual disabilities - A systematic review. Preventive Medicine, 97: 62-71. http H. Galloway, E. Newman. (2017). Is there a difference between child self-ratings and parent proxy- ratings of the quality of life of children with a diagnosis of attention-deficit hyperactivity disorder (ADHD)? A systematic review of the literature. ADHD
Health Research Classification System category	Mental Health

Extra information provided by this PSP
Original uncertainty examples	Why is a diagnosis / label important and what is the role of a diagnosis in obtaining support? ~ Can the criteria for being diagnosed be changed? The threshold for being diagnosed. What support is in place if a diagnosis is not given as you were 1 point short. ~ Does labelling a learning difficulty such as dyslexia have an impact on self esteem (ie if all the appropriate supports are in place does it matter whether or not the difficulty is given a name, which may help them to understand why they need the supports, or may make them feel stigmatised)
Submitted by	Professionals x 15 ~ parents/carers x 7 ~ Adults who experienced learning difficulties as a child x 0 ~ child/young person x 0

Extra information provided by this PSP

Original uncertainty examples

Why is a diagnosis / label important and what is the role of a diagnosis in obtaining support? ~ Can the criteria for being diagnosed be changed? The threshold for being diagnosed. What support is in place if a diagnosis is not given as you were 1 point short. ~ Does labelling a learning difficulty such as dyslexia have an impact on self esteem (ie if all the appropriate supports are in place does it matter whether or not the difficulty is given a name, which may help them to understand why they need the supports, or may make them feel stigmatised)

Submitted by

Professionals x 15 ~ parents/carers x 7 ~ Adults who experienced learning difficulties as a child x 0 ~ child/young person x 0

PSP information
PSP unique ID	0070
PSP name	Learning Difficulties (Scotland)
Total number of uncertainties identified by this PSP.	40 (To see a full list of all uncertainties identified, please see the detailed spreadsheet held on the JLA website)
Date of priority setting workshop	11 June 2018