Priority from the Bleeding Disorder PSP
| UNCERTAINTY: What is the psychological impact and burden of being a person or a carer of a person, with an acquired or non-acquired bleeding disorder? | |
|---|---|
| Overall ranking | This was one of the 15 questions at the workshop that fell outside of the Top 10. These were not ranked in any order of priority |
| JLA question ID | 0078/20 |
| Explanatory note | Inherited bleeding disorders ar a major burden on the individual and their familiy. We have concentrated on the physical aspects of the problem and not on the psychological stress. |
| Evidence | Cassis, FR, F Querol, A Forsyth, A Iorio, HIA Board. Psychosocial aspects of haemophilia: a systematic review of methodologies and findings. Haemophilia 18 (2012) e101-14. Waldboth, V, C Patch, R Mahrer-Imhof, A Metcalfe. Living a normal life in an extraordinary way: A systematic review investigating experiences of families of young people's transition into adulthood when affected by a genetic and chronic childhood condition. Int J Nurs Stud 62 (2016) 44-59. |
| Health Research Classification System category | Blood |
| Extra information provided by this PSP | |
|---|---|
| Original uncertainty examples | Not available |
| Submitted by | Not available |
| PSP information | |
|---|---|
| PSP unique ID | 0078 |
| PSP name | Bleeding Disorders |
| Total number of uncertainties identified by this PSP. | 66 (To see a full list of all uncertainties identified, please see the detailed spreadsheet held on the JLA website) |
| Date of priority setting workshop | 7 July 2018 |