Priority 19 from the Advanced Heart Failure PSP

UNCERTAINTY: Which healthcare professional is most appropriate for people with advanced heart failure to consult with at each stage of their disease journey? (JLA PSP Priority 19)
Overall ranking	19
JLA question ID	0098/19
Explanatory note	No significant evidence for people with advanced heart failure
Evidence	No systematic reviews on this topic in past five years
Health Research Classification System category	Cardiovascular

Extra information provided by this PSP
Original uncertainty examples	Can access to heart failure nurses be increased within the UK? How do you best access a heart failure nurse and what is their role with the MDT? ~ Who is best to talk to patients about end of life and advanced care planning? How do we recognise when a patient is becoming palliative and who is best placed to make this decision - GP, heart failure nurse, Cardiologist ~ Can a HF patient be effectively managed by a nurse practitioner? ~ Traditionally not concentrated on in secondary care although very important for patient and relatives. HF nurses do this much better than Drs. would be useful to know what exactly patient want to know and whether the current info is sufficient, who they would like to get this info from ~ Are we doing a good enough job and do patients know who to contact/ what to do when they have a problem ~ Are outcomes for patients with severe heart failure better if they are under heart failure nurse care or GP care
Submitted by	5 x health professionals, 2 x patients

Extra information provided by this PSP

Original uncertainty examples

Can access to heart failure nurses be increased within the UK? How do you best access a heart failure nurse and what is their role with the MDT?
~ Who is best to talk to patients about end of life and advanced care planning? How do we recognise when a patient is becoming palliative and who is best placed to make this decision - GP, heart failure nurse, Cardiologist ~ Can a HF patient be effectively managed by a nurse practitioner? ~ Traditionally not concentrated on in secondary care although very important for patient and relatives. HF nurses do this much better than Drs. would be useful to know what exactly patient want to know and whether the current info is sufficient, who they would like to get this info from ~ Are we doing a good enough job and do patients know who to contact/ what to do when they have a problem ~ Are outcomes for patients with severe heart failure better if they are under heart failure nurse care or GP care

Submitted by

5 x health professionals, 2 x patients

PSP information
PSP unique ID	0098
PSP name	Advanced Heart Failure
Total number of uncertainties identified by this PSP.	65 (To see a full list of all uncertainties identified, please see the detailed spreadsheet held on the JLA website)
Date of priority setting workshop	13 February 2019