Perianal Crohn’s Disease (Global)

About this Priority Setting Partnership 

Perianal Crohn’s disease is a common manifestation of Crohn’s disease occurring in around 18.7% of all patients. It is a highly morbid condition, which significantly impacts the quality of life, encompassing the burden of the disease and symptoms itself, as well as the burden of treatments. 

Launched in 2024, the Global Perianal Crohn’s Disease PSP will work with patients, carers and clinicians internationally to identify and prioritise uncertainties about aetiology, definitions and classifications, diagnosis and investigations, treatments, post-surgical concerns and all aspects of the patient pathway.

The scope of the PSP will include both adult and paediatric populations.

The initial survey opened in October 2024

Key documents

These documents set out the aims, objectives and commitments of the PSP.

Global Perianal Crohn’s Disease PSP protocol

Global Perianal Crohn’s Disease PSP Steering Group terms of reference