Gathering uncertainties
Methods used (eg survey, focus groups, interviews)
Survey
| Responders and uncertainties | Number | Percentage |
|---|---|---|
| Total respondents (across all methods) | 311 | 100 |
| Total patients and carers | 84 | 27 |
| Total health and care professionals | 210 | 67.5 |
| Total number of original uncertainties submitted | 844 | 100 |
| Original uncertainties in scope | 706 | 84 |
| Original uncertainties out of scope | 138 | 16 |
Interim prioritisation
Methods used (eg survey, focus groups, interviews)
Survey
| Responders and uncertainties | Number | Percentage |
|---|---|---|
| Total number of indicative questions (answered & unanswered) | 81 | 100 |
| Number of verified answered questions | 1 | 1 |
| Number of verified unanswered questions | 80 | 99 |
| Number of verified unanswered questions included in the interim prioritisation | 80 | Not applicable |
| Total respondents (across all methods) | 459 | 100 |
| Total patients and carers | 142 | 31 |
| Total health and care professionals | 305 | 66 |
| Number of questions taken to final workshop | 19 | Not applicable |
Final priority setting workshop
| Participants | Number | Percentage |
|---|---|---|
| Total participants | 30 | 100 |
| Total patients and carers | 16 | 53 |
| Total health and care professionals | 14 | 47 |
Notes:
In the initial survey, the remaining 17 respondents were from an organisation representing preterm infants and their families (11), or other/not answered (6).
In the interim prioritisation survey, of the total 459 respondents, 4 were excluded as they were from researchers. The remaining 8 respondents were people from organisations representing preterm infants and their families.