Stroke PSP Engagement Summary

Gathering uncertainties

Methods used (eg, survey, focus groups, interviews)

1. Survey 28.02.20-31.08.20 – online, plus paper/PDF versions in English, Welsh and Aphasiafriendly; all paper/PDF submissions were added to the online survey. 1407 respondents in total.

2. Workshops – 2 groups of people with aphasia, and 2 sessions with people affected at the virtual UK Stroke Assembly in July 2020. The participants at one of the aphasia groups completed individual surveys and these were added to the online survey. The questions from the other groups were added to the data set directly – a total of 33 questions from 15 people affected plus 4 carers.

3. Community Engagement - ISRAAC Somali Community Association (a registered community organisation based in Sheffield) spoke with 15 of their members who had had a stroke and gathered and presented questions in a report. 11 questions were added to the data set directly.

	Number	%
Total respondents (across all methods)	1,441	100
Total patients and carers	754	52
Methods of responding for patients and carers:
Survey - 522 patients, 198 carers
Workshops - 15 patients, 4 carers
Community Engagement - 15 patients, 0 carers
TOTAL 552 patients, 202 carers
Total health and care professionals (by survey only)	615	43
Total who did not state whether they were a patient, carer or professional	72	5
Total number of original uncertainties submitted	3,905	100
Original uncertainties in scope	3,792	97
Original uncertainties out of scope (includes spoiled responses)	113	3

Interim prioritisation

Methods used (eg, survey, focus groups, interviews):

1. Online survey 22.02.21-21.03.21

2. Assisted work with 3 people with aphasia to complete the online survey – included in the survey

	Number	%
Total number of indicative questions (answered & unanswered)	126	100
Number of verified answered questions	17	13
Number of verified unanswered questions	109	87
Number of verified unanswered questions included in the interim prioritisation	93
Total respondents (across all methods)	1,154	100
Total patients and carers	475	41
Total health and care professionals	677	59
Number of questions taken to final workshop - Rehabilitation and long-term care	18
Number of questions taken to final workshop - Prevention, diagnosis, pre-hospital and hospital care	14

Final priority setting workshop 1 - Rehabilitation and long-term care

	Number	%
Total participants	27	100
Total patients and carers	13	48%
Total health and care professionals	14	52%

Final priority setting workshop 2 - Prevention, diagnosis, pre-hospital and hospital care

	Number	%
Total participants	26	100
Total patients and carers	12	46%
Total health and care professionals	14	53%