Spinal Cord Injury (Sweden) PSP Engagement Summary

  • Published: 5 April 2023
  • Version: V1
  • 1 min read

Gathering uncertainties

Methods used (e.g. survey, focus groups, interviews): Online survey

Number %
Total respondents (across all methods) 243 100
Total patients and carers 162 66.6
Total health and care professionals 81 33.3
Total number of original uncertainties submitted 431 100
Original uncertainties in scope 303 70
Original uncertainties out of scope 128 30

Interim prioritisation

Methods used (eg survey, focus groups, interviews): Online survey

Number %
Total number of indicative questions (answered & unanswered) 57 100
Number of verified answered questions 1 1.7
Number of verified unanswered questions 56 98.3
Number of verified unanswered questions included in the interim prioritisation 56
Total respondents (across all methods) 272 100
Total patients and carers 189 69.5
Total health and care professionals 83 30.5
Number of questions taken to final workshop 24

Final priority setting workshop

Number %
Total participants 23 100
Total patients and carers 11 (+3) 48 (65)
Total health and care professionals 12 52

Notes:

We have chosen to categorise as such:
patients and carers = persons living with spinal cord injury and their close ones;
health and care professionals = professionals, including personal care attendants.

Three professionals doubled as patients or carers at the final priority setting workshop.