Spinal Cord Injury (Sweden) PSP Engagement Summary

Gathering uncertainties

Methods used (e.g. survey, focus groups, interviews): Online survey

	Number	%
Total respondents (across all methods)	243	100
Total patients and carers	162	66.6
Total health and care professionals	81	33.3
Total number of original uncertainties submitted	431	100
Original uncertainties in scope	303	70
Original uncertainties out of scope	128	30

Interim prioritisation

Methods used (eg survey, focus groups, interviews): Online survey

	Number	%
Total number of indicative questions (answered & unanswered)	57	100
Number of verified answered questions	1	1.7
Number of verified unanswered questions	56	98.3
Number of verified unanswered questions included in the interim prioritisation	56
Total respondents (across all methods)	272	100
Total patients and carers	189	69.5
Total health and care professionals	83	30.5
Number of questions taken to final workshop	24

Final priority setting workshop

	Number	%
Total participants	23	100
Total patients and carers	11 (+3)	48 (65)
Total health and care professionals	12	52

Notes:

We have chosen to categorise as such:
patients and carers = persons living with spinal cord injury and their close ones;
health and care professionals = professionals, including personal care attendants.

Three professionals doubled as patients or carers at the final priority setting workshop.