Pulmonary Hypertension (Canada) PSP Engagement Summary

Gathering uncertainties

Methods used (eg survey, focus groups, interviews): online surveys

	Number	%
Total respondents (across all methods)	249a	100
Total patients and carers	188	76
Total health and care professionals	31	12.5
Total number of original uncertainties submitted	1847	100
Original uncertainties in scope	1588	86
Original uncertainties out of scope	259	14

Interim prioritisation

Methods used (eg survey, focus groups, interviews): online survey

	Number	%
Total number of indicative questions (answered & unanswered)	187	100
Number of verified answered questions	30	16
Number of verified unanswered questions	157	84
Number of verified unanswered questions included in the interim prioritisation	156b
Total respondents (across all methods)	240c	100
Total patients and carers	156	65
Total health and care professionals	42	18
Number of questions taken to final workshop	25

Final priority setting workshop

	Number	%
Total participants	22	100
Total patients and carers	16	73
Total health and care professionals	6	27

Notes

^a28 respondents (11%) indicated “Prefer not to say”, “Other”, or entered no response and 2 respondents were members of a patient advocacy organization.

^bTwo unanswered questions (48 and 72) were combined due to overlap in meaning and rephrased as a single question.

^c42 respondents (18%) indicated “Prefer not to say” or entered no response