Mitochondrial disease PSP Engagement Summary

  • Published: 20 May 2020
  • Version: V1
  • 1 min read

Gathering uncertainties

Methods used (eg survey, focus groups, interviews): Online survey, with paper copies available on request.

Number %
Total respondents (across all methods) 147 100
Total patients and carers 97 66
Total health and care professionals 50 34
Total number of original uncertainties submitted 709 100
Original uncertainties in scope 484 68
Original uncertainties out of scope 225 32

Interim prioritisation

Methods used (eg survey, focus groups, interviews): Online survey, with paper copies available on request.

Number %
Total number of indicative questions (answered & unanswered) 42 100
Number of verified answered questions 0 0
Number of verified unanswered questions 42 100
Number of verified unanswered questions included in the interim prioritisation 42
Total respondents (across all methods) 166 100
Total patients and carers 139 83.7
Total health and care professionals 27 16.3
Number of questions taken to final workshop 24

Final priority setting workshop

Number %
Total participants 30 100
Total patients and carers 17 57
Total health and care professionals 13 43