Juvenile Idiopathic Arthritis PSP Engagement Summary

Gathering uncertainties

Methods used (eg, survey, focus groups, interviews): survey (both online and hardcopy) (506 questions), focus groups (81 questions), guidelines (17 questions)

	Number	%
Total respondents (across all methods)	278	100
Total patients	141	50.7
Total carers	88	31.7
Total health and care professionals	49	17.6
Total number of original uncertainties submitted	604	100
Original uncertainties in scope	519	85.9
Original uncertainties out of scope	85	14.1

Interim prioritisation

Methods used (eg, survey, focus groups, interviews): survey (both online and hardcopy), focus groups (with children from 10-13 years)

	Number	%
Total number of indicative questions (answered & unanswered)	53	100
Number of verified answered questions	0	0
Number of verified unanswered questions	53	100
Number of verified unanswered questions included in the interim prioritisation	53
Total respondents (across all methods)	303	100
Total patients and carers	261	86
Total health and care professionals	42	14
Number of questions taken to final workshop	21

Final priority setting workshop

	Number	%
Total participants	20	100
Total patients and carers	10	50
Total health and care professionals	10	50