Inherited Retinal Disease (Australia) PSP engagement summary
- Published: 20 November 2024
- Version: V1
- 1 min read
Gathering uncertainties
Methods used (eg, survey, focus groups, interviews)
- Survey (online, via video call or phone call, and hard-copy)
| Responders and uncertainties | Number | Percentage |
|---|---|---|
| Total respondents (across all methods) | 69 | 100 |
| Total patients and carers | 54 | 78 |
| Total health and care professionals | 16 | 23 |
| Total number of original uncertainties submitted | 244 | 100 |
| Original uncertainties in scope | 223 | 91 |
| Original uncertainties out of scope | 21 | 9 |
Interim prioritisation
Methods used (eg survey, focus groups, interviews)
- Survey (online, via video call or phone call, and hard-copy)
| Responders and uncertainties | Number | Percentage |
|---|---|---|
| Total number of indicative questions (answered & unanswered) | 42 | 100 |
| Number of verified answered questions | 1 | 2 |
| Number of verified unanswered questions | 41 | 98 |
| Number of verified unanswered questions included in the interim prioritisation | 41 | Not applicable |
| Total respondents (across all methods) | 151 | 100 |
| Total patients and carers | 135 | 89 |
| Total health and care professionals | 16 | 11 |
| Number of questions taken to final workshop | 16 | Not applicable |
Final priority setting workshop
| Participants | Number | Percentage |
|---|---|---|
| Total participants | 24 | 100 |
| Total patients and carers | 13 | 54 |
| Total health and care professionals | 11 | 46 |
Notes
The total percentage for the ‘Gathering uncertainties’ participants sums to more than 100% because one participant was both a ‘patient’ and a health professional.