Developmental Childhood Stammering PSP engagement summary

Gathering uncertainties

Methods used (eg survey, focus groups, interviews)

Survey – disseminated via social media & leaflets
Interactive activity at conference (post-it note questions)
Open February 2022 – September 2022

Responders and uncertainties	Number	Percentage
Total respondents (across all methods)	146	100
Total children and young people	32	22
Total parents, family, carers, friends	50	34
Total health and care professionals	46	32
Other	18	12
Total number of original uncertainties submitted	385	100
Original uncertainties in scope	247	64
Original uncertainties out of scope	138	36

Interim prioritisation

Methods used (eg survey, focus groups, interviews)

(Survey)
Open March 2023 – August 2023

Responders and uncertainties	Number	Percentage
Total number of indicative questions (answered & unanswered)	50	100
Number of verified answered questions	0	0
Number of verified unanswered questions	50	100
Number of verified unanswered questions included in the interim prioritisation	49	Not applicable
Total respondents	180	100
Total children and young people	32	18
Total parent/guardian, friends, colleagues	80	44
Total health/education professional	68	38
Number of questions taken to final workshop	25	Not applicable

Final priority setting workshop

Participants	Number	Percentage
Total participants	22	100
Total patients/ guardians and family members	15	68
Total health and care professionals	7	32

Notes

Interim prioritisation:

Due to an administrative error, 49 questions were included in the survey rather than 50. The question that was unintentionally omitted from the prioritisation survey was:

Can working on executive function skills (for example flexible thinking, planning ahead, organising and problem solving skills) help children who stammer?

A total of 201 respondents started the survey, however only 180 participated in the second step (ranking the top ten questions they had selected). This is the reason that we have recorded the total respondents as 180.

It is also worth noting that not all respondents who began the process of ranking the questions, ranked all 10 questions (i.e. from 1 through to 10) but instead partially ranked them. In the analysis, we included data from all respondents who had either fully or partially ranked the ten questions.