Gathering uncertainties
Methods used (eg survey, focus groups, interviews)
Survey
| Responders and uncertainties | Number | Percentage |
|---|---|---|
| Total respondents (across all methods) | 1020 | 100 |
| Total patients and carers | 785 | 77 |
| Total health and care professionals | 173 | 17 |
| Total number of original uncertainties submitted | 2281 | 100 |
| Original uncertainties in scope | 1528 | 67 |
| Original uncertainties out of scope | 753 | 33 |
Interim prioritisation
Methods used (eg survey, focus groups, interviews)
Survey
| Responders and uncertainties | Number | Percentage |
|---|---|---|
| Total number of indicative questions (answered & unanswered) | 63 | 100 |
| Number of verified answered questions | 0 | 0 |
| Number of verified unanswered questions | 63 | 100 |
| Number of verified unanswered questions included in the interim prioritisation | 63 | Not applicable |
| Total respondents (across all methods) | 660 | 100 |
| Total patients and carers | 535 | 81 |
| Total health and care professionals | 91 | 14 |
| Number of questions taken to final workshop | 26 | Not applicable |
Final priority setting workshop
| Participants | Number | Percentage |
|---|---|---|
| Total participants | 31 | 100 |
| Total patients and carers | 15 | 48 |
| Total health and care professionals | 16 | 52 |
Notes:
Categorisation of respondents: For both surveys, gathering uncertainties and interim prioritisation, the same questions were asked to gather information about how the respondent was affected by cardiomyopathy. The totals do not equal 100%, as in both surveys, a number of people did not provide this data. It was also possible for respondents to select multiple categories – they may be a health care professional and a patient or carer, and multiple categories of patient and carer too. For clarity within this data, and to minimise duplication in the data, if the respondent has selected health care professional they are included solely in that category.
Gathering uncertainties: Effort was put into trying to arrange discussion groups for both youth (18-25) and ethnic minorities, however due to low numbers of people engaged these did not go ahead, and those due to attend were encouraged to complete the survey instead.
Workshop attendees: 1 participant fell into both categories, so in line with the approach to the surveys, they have been included in health care professional only for the purpose of this summary.