Living With and Beyond Cancer PSP Engagement Summary

Gathering uncertainties

Methods used (eg survey, focus groups, interviews)

UK-wide survey

Responders and uncertainties	Number	%
Total respondents (across all methods)	1429	100
Total patients and carers	952	67
Total health and care professionals	375	26
patient/carer/professional	102	7
Total number of original uncertainties submitted	3475	100
Original uncertainties in scope	1914	55
Original uncertainties out of scope	1561	45

Interim prioritisation

Methods used (eg survey, focus groups, interviews)

UK-wide survey

Responders and uncertainties	Number	%
Total number of indicative questions (answered & unanswered)	76	100
Number of verified answered questions	22	29
Number of verified unanswered questions	54	71
Number of verified unanswered questions included in the interim prioritisation	54
Total respondents (across all methods)	1779	100
Total patients and carers	1347	76
Total health and care professionals	345	19
patient/carer/professional	87	5
Number of questions taken to final workshop	27

Final priority setting workshop

Participants	Number	%
Total participants	32	100
Total patients and carers	13	41
carer/professional	2	6
patient/professional	3	9
Total health and care professionals	14	44

Notes

Total number of respondents who proposed questions in the first survey is 1492 and those who ranked questions in the second survey is 1918. Numbers indicated above are less because some did not answer the demographic question.