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Lichen Sclerosus PSP Engagement Summary

Contents

Published: 20 May 2024

Version: 1

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Gathering uncertainties

Methods used (eg survey, focus groups, interviews)

Survey

Responders and uncertaintiesNumber%
Total respondents (across all methods) 653 100
Total patients and carers 404 64
Total health and care professionals 222 35
Total number of original uncertainties submitted 2580 100
Original uncertainties in scope 1920
Original uncertainties out of scope 660 0

Interim prioritisation

Methods used (eg survey, focus groups, interviews)

Survey

Responders and uncertaintiesNumber%
Total number of indicative questions (answered & unanswered) 40 100
Number of verified answered questions 2 5
Number of verified unanswered questions 38 95
Number of verified unanswered questions included in the interim prioritisation 38
Total respondents (across all methods)    954 100
Total patients and carers 625 66
Total health and care professionals 334 35
Number of questions taken to final workshop 23

Final priority setting workshop

ParticipantsNumberPercentage
Total participants 29 100
Total patients and carers 14 48
Total health and care professionals 15 52

Notes

eg please explain if totals do not add up to 100%

  • Some respondents identified as patients and health professionals