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Hyperacusis PSP Engagement Summary

Contents

Published: 20 May 2024

Version: 1

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Gathering uncertainties

Methods used (eg survey, focus groups, interviews)

Online and paper survey option

Responders and uncertaintiesNumber%
Total respondents (across all methods) 312 100
Total patients, patients and carers 201 64
Total family, friends and support 12 4
Total health and care professionals 87 28
Total educational professionals 4 1
Not specified 8 3
Total number of original uncertainties submitted 2370 100
Original uncertainties in scope 1777 75
Original uncertainties out of scope 593 25

Interim prioritisation

Methods used (eg survey, focus groups, interviews)

Online Optimal card sorting survey

Responders and uncertaintiesNumber%
Total number of indicative questions (answered & unanswered) 85 100
Number of verified answered questions 0 0
Number of verified unanswered questions 85 100
Number of verified unanswered questions included in the interim prioritisation 85
Total respondents (across all methods)    327 100
Total patients, parents and carers 236 72
Total friends, family and support 9 3
Total health and care professionals 80 24
Total educational professionals 2 1
Number of questions taken to final workshop 28

Final workshop

ParticipantsNumber%
Total participants 21 100
Total patients, parents and carers 11 52
Total health and care professionals 10 48

Notes: 

In the final workshop, two of the patients were also educational professionals