TranslateThe purpose of this Question Verification Form is to enable Priority Setting Partnerships (PSPs) to describe clearly how they checked that their questions were unanswered, before starting the interim prioritisation stage of the process.
The JLA requires PSPs to be transparent and accountable in defining their own scope and evidence checking process. This will enable researchers and other stakeholders to understand how individual PSPs decided that their questions were unanswered, and any limitations of their evidence checking.
Name of the PSP
Hyperacusis
Please describe the scope of the PSP
The aim of the Hyperacusis PSP is to identify the unanswered questions about hyperacusis covering a wide scope: (1) causes, (2) assessment/diagnosis, (3) prevention and education, (4) service organisation and delivery (including cost, involvement of schools, attitudes etc), and (5) management (treatment, rehabilitation, self-management, interventions) from the perspectives of people (adults and children) with lived experience of hyperacusis and healthcare professionals, and to then prioritise those unanswered questions that people with lived experience of hyperacusis and healthcare professionals agree are the most important.
Please provide a brief overview of your approach to checking whether the questions were unanswered
Given the broad scope of our PSP, we took a broad approach to checking uncertainties, identifying literature above systematic reviews and current and previous trials. We also looked at literature from scoping reviews, which does not include any data specifically, or meta-analysis data, to make sure we knew all the available evidence about the different management strategies, assessments and causes of hyperacusis.
We also investigated grey literature for clinical guidelines and any guidance for education/prevention, this would include guidelines produced for hearing and tinnitus to see if there was any evidence presented for hyperacusis.
Please list the type(s) of evidence you used to verify your questions as unanswered
- systematic reviews
- scoping reviews
- clinical guidelines
Please list the sources that you searched in order to identify that evidence
- Cochrane Ear, Nose and Throat Disorders Group Trials Register
- the Cochrane Central Register of Controlled Trials (CENTRAL)
- PubMed
- Embase
- International Standard Randomised Controlled Trial Number (ISRCTN) registry
- ClinicalTrials.gov
- Google scholar
What search terms did you use?
Hyperacusis, sound sensitivity, sound intolerance
Please describe the parameters of the search (eg time limits, excluded sources, country/language) and the rationale for any limitations
No time restrictions were used, but the search was limited to English only for clinical guidelines. It was felt that limiting the search to the UK only would be most appropriate given that the aim was to prioritise questions about services in the UK.
Names of individuals who undertook the evidence checking
Kathryn Fackrell, Sandra Smith (RA)
On what date was the question verification process completed?
1 May 2018
Any other relevant information
None
Version 1.0, September 2018