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Developmental Childhood Stammering PSP engagement summary

Contents

Published: 30 May 2024

Version: 1

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Gathering uncertainties

Methods used (eg survey, focus groups, interviews)

Survey – disseminated via social media & leaflets
Interactive activity at conference (post-it note questions)
Open February 2022 – September 2022

Responders and uncertaintiesNumberPercentage
Total respondents (across all methods) 146 100
Total children and young people 32 22
Total parents, family, carers, friends 50 34
Total health and care professionals 46 32
Other 18 12
Total number of original uncertainties submitted 385 100
Original uncertainties in scope 247 64
Original uncertainties out of scope 138 36

Interim prioritisation

Methods used (eg survey, focus groups, interviews)

(Survey)
Open March 2023 – August 2023

Responders and uncertaintiesNumberPercentage
Total number of indicative questions (answered & unanswered) 50 100
Number of verified answered questions 0 0
Number of verified unanswered questions 50 100
Number of verified unanswered questions included in the interim prioritisation 49 Not applicable
Total respondents  180 100
Total children and young people 32 18
Total parent/guardian, friends, colleagues 80 44
Total health and care professionals 68 38
Number of questions taken to final workshop 25 Not applicable

Final priority setting workshop

ParticipantsNumberPercentage
Total participants 22 100
Total patients/ guardians and family members 15 68
Total health and care professionals 7 32

Notes

Interim prioritisation:

Due to an administrative error, 49 questions were included in the survey rather than 50. The question that was unintentionally omitted from the prioritisation survey was:

Can working on executive function skills (for example flexible thinking, planning ahead, organising and problem solving skills) help children who stammer? 

A total of 201 respondents started the survey, however only 180 participated in the second step (ranking the top ten questions they had selected). This is the reason that we have recorded the total respondents as 180.

 It is also worth noting that not all respondents who began the process of ranking the questions, ranked all 10 questions (i.e. from 1 through to 10) but instead partially ranked them. In the analysis, we included data from all respondents who had either fully or partially ranked the ten questions.