Methods used (eg survey, focus groups, interviews)
An initial survey was conducted and participants (healthcare professionals, patients, family, and caregivers) were asked to list their top 3 questions to be addressed by venous thromboembolism research.
This survey was distributed online and though paper form in English and French languages.
Relevant clinical practice guidelines were also reviewed and evidence uncertainties (recommendations without high grade, IA evidence) were collected.
Responders and uncertainties
Number
Percentage
Total respondents (across all methods)
229
100
Total patients and carers (16 were lived experience not otherwise specified)
164
72
Total health and care professionals
65
28
Total number of original uncertainties submitted
728
100
Original uncertainties in scope
16
2
Original uncertainties out of scope
712
98
Interim prioritisation
Methods used (eg survey, focus groups, interviews)
The initial survey and evidence uncertainties from clinical practice guidelines was combined and grouped into summary priority statements through consensus among the project steering group.
The second (interim) online survey was then conducted online in English and participants (healthcare professionals, patients, family, and caregivers) were asked to select their ten highest priorities from the list of summary priority statements.
Responders and uncertainties
Number
Percentage
Total number of indicative questions (answered & unanswered)
54
100
Number of verified answered questions
0
0
Number of verified unanswered questions
54
100
Number of verifiedunanswered questions included in the interimprioritisation
54
Not applicable
Total respondents (across all methods)
72
100
Total patients and carers (2 were lived experience not otherwise specified)
34
47
Total health and care professionals
38
53
Number of questions taken to final workshop
18
Not applicable
Final priority setting workshop
In the finial step, the interim survey results were brought to a final virtual consensus workshop. The workshop was facilitated by the JLA and included patient and clinician participants who met over two days to achieve a consensus on ranked research priorities.
Participants
Number
Percentage
Total participants
26
100
Total patients and carers
12
46
Total health and care professionals
14
54
Notes:
Survey respondent types were allowed to specify ‘other’. A total of 18 participants (16 in initial gathering uncertainties survey and 2 in interim prioritization survey) identified as non-healthcare professionals persons with lived experience other than a patient or carer. In the above reporting, these participants were categorized as ‘patients and carers’.
